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Russell Running London Marathon April 22nd Raising Money for Leukaemia Research - Please Give Generously

by moira603 @ Wednesday, Feb. 07, 2007 - 12:21:40 pm

Dear All,

A long time sice the last post but we are doing ok, me, the boys, and the rest of the family, and are gradually returning to the flow of life after a difficult 6 months.

Running the London Marathonon Aprill 22nd this year is my way of doing something in Moira's memory to help progress understanding and treatment of Acute Myloid Leukaemia.

Donating through the Leukaemia Research 'Just Giving' site is simple, fast and totally secure. It is also the most efficient way to sponsor me: Leukaemia Research will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
Just click on the link below........

http://www.justgiving.com/russellismith

I also plan to get BP to match whatever I raise through it's 'matched giving' programme available to employees.

So please sponsor me now, just click on the link below and follow the simple instructions

Remember - it could be your donation, however small, that might make a breakthrough!

Many thanks for your support.

Russell.



 
 

Memories from the Ya Ya Sisterhood...

by moira603 @ Thursday, Aug. 03, 2006 - 05:22:56 pm

I am deeply honoured to be giving this tribute to Moira, a very dear friend...I face the task with some trepidation, but as ever Mo has made it easy for me. All the anecdotes and memories from her friends around the world paint the same picture of a fun loving warm and generous friend.

So here are the collective memories from the Ya Ya Sisterhood. The women from Melbourne, Glasgow, Aboyne, Anchorage, and Cairo. We met at book clubs, quilting bees, school runs and socials. A group who have had the joy of knowing Mo as she travelled around the world with Russ and the boys.

The common thread of our memories of Mo is obvious to all. Strength of character, fierce love of her boys, a zest for life, and a genuine sense of fun and sharing. With her beaming smile and a very distinct laugh Moira has touched our lives in many ways. With Mo we could always be ourselves. We all benefited from her warmth and her joy of the fine things in life.

Here’s just a taste of the memories she has left with us..

Mo was an inspiring role model who set the standard for us on motherhood. Moira gave everything she could to making the best life possible for her family; facing up to every phase of the boys lives with energy, integrity and love. Mo always put her family first. From making a warm and welcoming home for her boys in every location, to going into battle with the school be it over French lessons or cocoa pops. The love and effort and commitment she gave to Russell, Elliott, Ross and George has set up them up, ready to take on whatever the future may bring.

Mo had a passion for exploring the places she lived, and especially loved the great outdoors. She was a fantastic researcher and spent much time planning those extra special holidays for her family and friends. From a West Highland Lodge complete with roaring stags, to a Corsican villa with little white mice in the trees. From dock jumping at Big Lake in Alaska, to to skidoo rides and out-skiing the wolves at China Hot Springs(!). From Cape Cod to Mexico, Hawaii to the Grand Canyon. And latterly Egypt. Sharing her love of camping and photography in the Egyptian desert with dear friends. Sitting under the stars putting the world to rights …

Moira loved good wine. She often said “life is too short for drinking bad wine”. She earned a reputation of keeping the good stuff at the back of the fridge; topping her glass up in the kitchen with Cloudy Bay, while serving cheapo plonk to the less discerning visitors. Mo had the same characteristics as two of her favourite wines Cloudy Bay Sauv Blanc…“vibrantly aromatic… an exotic infusion of fresh ginger, sweet basil, and lemongrass… mouth-wateringly juicy … with a refreshing crispness”….and Tim Adams The Fergus… “deliciously different... great served at a special dinner with wine-loving friends…intensely powerful.. graceful hints of warm earth and sweet spice … medium-bodied with a supple strength”...

Mo loved shopping and she acted as a shopping consultant to many of us. You only had to tell her what you needed and she’d know just where to find it, down to which catalogue and page number! She had a great knack of finding the perfect card or gift for any occasion - forget-me-not seeds for Ian, a silver bowl for Estelle, quilted baskets for Lynda, Sue, Megan and Sheila, a set of moose antlers for me (!). Fabulous art from Australia. She loved Cairo and picked up many treasures from Road 9 and the Khan from carpets to alabaster bowls. In the early Aboyne years it was Mo who steered us towards brightly checked trousers from Pedlars… and then she brought Boden Man into our midst. Whilst our men wore fleeces, baggy ill fitting shorts and faded T-shirts, Russell stood out in the crowd with neat pressed deck shorts and crisp linen check shirts. Today its clear she has had quite an influence on our men!

Moira was the hostess with the mostess. Her table was the place to be! From fancy dress parties in Australia - usually ending up fully clothed in the pool - to the Abyone ball in Coo Cathedral. From Burns night in Alaska burling with 5 star generals, to ‘pole dancing’ at the Rugby Club desert ball next to the Giza pyramids. You could guarantee Mo’s table was always the worst behaved and had the most fun!

One of the many things Mo brought back from her time in Australia was a cappuccino machine. Before the days of Starbucks and El Greco’s Mo’s kitchen table became the place to put the world to rights over a steaming mug of Lavazza black label. Mo always had a warm welcome for anyone dropping by… but there was always something about the warm and calming atmosphere that Mo created around her and her kitchen table. Our menfolk adored her as much as we did. It was only later we realized the secret of her success. Subtle blends of Lavender, Mandarin, and Geranium wafting from burners and candles, creating an invisible and intoxicating air that calmed and relaxed us. Drawing us into the glow of the “red hot chili pepper” lights and her fabulous hospitality.

Mo was always ahead of the pack. She was the first to get an iPod, the first to buy on E bay. She was more computer literate than the rest of us put together and in January she introduced all to the wonderful world of blogging. Her blog has been a lifeline to all of us over the last 7 months. A work of art. A window into Mo’s inner thoughts and inner strength. A showcase for her writing, her wit and her wicked sense of humour. A two-way support structure for all of us… her friends and her family.

So thank you Mo, for being part of our lives as we’ve brought up our children, danced, laughed and started to go grey...

you will be with us,
every time we take a sip of sauvignon blanc (Oyster Bay or Cloudy Bay), we’ll silently toast you and smile,
every time the Boden catalogue lands on our doorsteps we’ll wonder “could our men ever look as good as Russell in this?” and smile,
every time we sit at our kitchen tables for a cappuccino and a good gossip, you’ll be there listening and smile,
every time we blog we’ll remember when we kept losing everything because we got the security code wrong and smile,
every time we light a candle we will reflect on our good fortune of knowing you and smile,
you are with us, and we will always smile.

“Some people come into our lives and leave an imprint on our hearts, and we are never the same”

What an incredible human being! How great was fate to let us have the chance to know you!

Thank you, and farewell Mo – the Queen of the Ya Ya Sisterhood.

Rosy
3rd August 2006

(Spoken at Mo's funeral. Based on the contributions of many friends from around the world. Thank you xxx)

Note Re cards for Moira.........

by moira603 @ Friday, Jul. 28, 2006 - 01:04:06 pm

Although the Church Service is Family Flowers only, if you do want to send letters or cards these should go to Moira's parents house in Scotland.....

Mr and Mrs B.M. Stuart
Broom Croft
Lumphanan
Aberdeenshire
AB31 4RJ

Thanks,

Russell.

Moira’s Funeral Arrangements - Wednesday August 2nd...............

by moira603 @ Thursday, Jul. 27, 2006 - 02:09:42 pm

Dear Friends of Moira’s Blog,

10.30am - Mid Deeside Church Torphins, Aberdeenshire Scotland:
A public church service to celebrate Moira’s life for family and all friends.
Family flowers only.
Donations to “The Moira Smith Forget Me Not Fund for Leukaemia Research” at the church or to Leukaemia Research, 43 Great Ormond Street, London WC1N 3JJ
A book of remembrance will be available for all to sign.
All are invited to refreshments after the service at the Learney Arms Hotel, Torphins.

1.20pm - Aberdeen Crematorium. Aberdeenshire, Scotland:
A private crematorium service for family and close friends.

Afternoon/Evening – Woodbank, Cults, Aberdeen:
A private food and drinks function for family and close friends.

The last two days have been hard for us all, but the remarkable thing is how much love, generosity and celebration there already is of Moira’s life as family and friends interact over arrangements. This is something Moira would definitely have wanted, and so we intend to make her proud, by continuing the contribution she made to all of our lives.

Russell, Boys and Family
XXXXX

25th July 2006, Day +97

by moira603 @ Tuesday, Jul. 25, 2006 - 09:30:30 am

Dear Friends of Moira’s Blog,

I have some very sad news for you today. ….

After a fight lasting almost a year Moira died peacefully early this morning in the Derek Mitchell Unit at Kings College Hospital. Moira’s close family were able to make it to her bedside to say goodbye and be there for her.

In the end there were just too many complications for Moira’s weary body to battle at once and the Leukaemia had also returned with no realistic options for further treatment.

The comments and support, have all made a huge difference in keeping Moira me and the boys going and I know Moira would want me to thank you all for that. So thank you all for your love and support over the last year.

We go forward now with the power of love, family and friends in our hearts and will work to realise the future plans which we worked out together as a family.

We will start with the new house in Malvern and take it from there. We have a very special extended family and group of friends behind us as we do this, and so are bound to make the most of everything that lies ahead.

Thanks again for all the love and support.

Russell and the Boys
XXXX

Please click on the link below to see our favourite memory of Moira at Wimbledon, 2006.



http://i79.photobucket.com/albums/j130/ell1402/DSC01097.jpg



Day +88.......Biopsy Result Good, Return to DMU for a Short Stay

by moira603 @ Sunday, Jul. 16, 2006 - 07:39:26 pm

Quick update from Russell....

Moira moved back to the DMU ward today, to assure quality delivery of remaining CMV and VOD drugs over next couple of weeks and to monitor response to 2nd infusion of Mylotarg given last Tuesday....DMU has more experienced/specialised nursing care than Guthrie plus positive pressure room with an AC to combat dehydration/hot weather.

Last week was a tough week waiting on the results of latest Biopsy to evaulate impact of Mylotarg on remaining leukaemic cells spotted at previous biopsy, thanks to Moira's Mum, Lynda, Claire and Ali et al. for helping out and feeding the boys...........

Yes the biopsy results were good............<10% abnormal cells, confirming theMylotarg working. The 2nd infusion is designed to nail the rest of the bastards.

I was away in Cairo last week packing up the house, flew out Saturday, one days prep on Sunday (aided by Ross and Elliott, plus Nela, Abdou, Lisa, Heike – thanks to all of you), then packers in (help from Aine – thanks again, kept me cool and sane), all done by Thursday 5pm, boy was it hot (2 days at 47degC), sad to leave, but felt good to have one less thing to manage - even managed an overnight trip to Moon Beach to windsurf my heart out on Friday before returning home Saturday, so don't feel too sorry for me.

We are hoping to get thru this phase of treatment by end July..........there is then a further piece of treatment aimed at finishing off the abnormal cells (longterm).....this will involve the use of Alpha-Interferon to stimulate the new/donor's immune system to attack any remaining abnormal/leukaemic cells. This will take place late July/early August and may make Moira quite ill again (mega Flu like symptoms are the principal side effect). The Dr’s and the Charismatic Prof Mufti seem very positive about the prognosis and want to hold back from using a Donor Lymphocyte Infusion at this stage (something that had been on the agenda, but would take time to line up).

That’s enough technical stuff for now……….on the home front I am off up to the new house to start the building contractor for the roof off tomorrow, then am taking 3 of the boys to see the Red Hot Chilli Peppers at Earls Court on Tuesday night……a nice break from being at home, seeing Mum in hospital and the odd skateboarding expedition around the South Bank………….I think we will do the Motor Show and the F1 exhibition at the Design Museum this next couple of weeks too.

Keep up the comments and support, it all makes a huge difference in keeping us positive and moving forward a day at a time………..we will get there in the end.

Love Russell & Moira.
XXX

Day +78

by moira603 @ Thursday, Jul. 06, 2006 - 12:10:14 pm

So this week has been a hotty! And not much fun in the hospital with no air conditioning. However there was Wimbledon.........
We had a great day out , Russ picked me up from the hospital and we were whisked off to the members entrance ( no queues!) and off to experience the delights. We had great seats on centre court in the shade which was just as well as it was a steamy 32c and I was seriously in danger of not coping. A  short trip to the St. Johns Ambulance Room allowed me a lie down in some air conditioning and then I was able to continue and got to watch the Murray/Bagdhatis match. Less said about that the better, we also saw the first set of federers match before we retired to the members enclosure for afternoon tea and the arrival of our car !! Russ sipped Champagne and I slugged on the water! Didn't see Joss, I did look for you but......

Since then I've been pretty much at hospital and will be for the next week at least. My count is completely flat now which is down to the mylotarg and so I should be in a positive pressure room like before but they don't have any on Guthrie. So I'm wearing masks and just trying to be very careful as infection is the biggest threat to me at the moment. I have a biopsy to look forward to Monday (haha) , CMV still not under control and an infection in my line ,par for the course...
Mum will be here on Monday and Ross and Elliott will be back from Cairo so that will pick me up !!
Meanwhile Russ will be beavering away in Cairo packing up the house and George will be up in bonny Scotland. Phew - the organisation...............

As I type we're also finalising our plans  for the house which we complete on tomorrow. So much to think about, Bathrooms to choose, builders,painters and decorators to find the list is endless. It would be exciting if I could get to the shops and choose and had more energy! As it is it sometimes feels overwhelming, but we'll get there.

Right  thats enough for now I need to lie down ........
I'll try and pop back on dial up if I can heave my laptop out of my bag.

Love you all, I'm very tired so appreciate your inspirational emails,cards and blogs more than you know.

M
X

day + 70

by moira603 @ Wednesday, Jun. 28, 2006 - 08:54:31 pm

Back in Guthrie, had the mylotarg eventually on Tuesday. So glad I didn't check in on Sunday as I was suppposed to and I went home Monday night after spending all day here. Still here we are, the mylotarg is in and hopefully doing it's job. I had a reaction after, rigors or the shakes. which wasn't pleasant and they didn't seem to know whether it was the mylotarg or an infection. So now I'm on anti biotics as well which is a bit annoying but can't be helped just being safe.I'm hoping that everything goes ok today and tomorrow and they can let me out and I can be back on dailies. Still no results from the CMV which is annoying as it would be good to know we're beating the virus and I could stop those drugs too. But hey Rome wan't built in a day and I'm nothing if not patient. A patient patient! AAARGGGGHHH how infuriating.

I'm going to try and get out Friday night as it's Georges Birthday and I'd really like to be at home with him.
He and Ell come back from school that day and Ell goes off to Cairo on Saturday for 10days so it would be nice to have a nice birthday supper together.

So now it's late and I must away to bed, I had a late night flying visit from Jane and Jim, it was lovely to see them.

I've got tickets for wimbledon on Monday so I've got to get out of here!!!! And a new dress from LK Bennett to wear ( no shoes though!!!)

Might have to stop enroute - lets hope it doesn't rain ! In every sense of the word.

Night Night all you lovelies,

M

Day + 67

by moira603 @ Sunday, Jun. 25, 2006 - 07:47:28 pm

ok so here I am and i know I haven't been talking or blogging but I hope you'll understand.
I managed to get the hospital to agree to let me out and come in on a a daily basis for my cmv treatment and so could retreat to claires whilst Russ was in Cairo. I was tired and the hot weather made it very uncomfortable but it's better than being in hospital. I had my hickman line put in a week past Friday, Claire was there as I went in and Jane waiting for me as they rolled me out and then tarty Sheila arrived so all in all I was ok, and after a week of searching for a veins and stabbings and heat packs it really was the best option. Russ got back on Monday and on Tuesday I had my day 56 biopsy. Results on Thursday for both CMV and Bone marrow were not good with the marrow obviously being the most devastating.
I don't really know what to tell you guys, I can do nothing but carry on. So tomorrow I head back to the Guthrie ward for another treatment in the hope that that will kill the bastard and they have also stopped my anti rejection drugs in the hope that that will induce some graft versus host disease. So it seems like I have to get very sick again in the hope that I can beat this. Not a prospect I relish but if it works. All the time of course the drugs are taking their toll on my body, as you can imagine. So not brilliant news guys and the reason it takes me time to blog is because I feel like it's all so depressing and I didn't want it to be like this.

The boys have been here this weekend, Ross has been back since Wednesday having finished his exams and the other two finish this week and Russ will go and pick them up - so it will be full house! Both Ell and Ross are then heading off to Cairo for one last fling and Russ will head out on 8th to finally pack the house up and say his final farewells. I will be god knows where !!! There seems to be little point in planning as i've no idea what's coming and ideally it would be a good sign if I was sick and the donors cells were attacking mine particularly the bad ones.

So everything keeps turning, each morning, each minute I try to see the good things - hard sometimes - but not impossible. I've been reading
"you can't afford the luxury of a negative thought" which helps me stay positive and in the moment. I wish that there weren't houses to buy and sell, countries to move and that I was living nearer my friends and family, it would take the pressure off, but it just is the way and I can't change it. Russ and I just go on. Your support has lifted us through so many dark times and I know it will do the same again, even as the odds get shorter my heart gets bigger and my determination stronger. I could be that 5 % couldn't I ?

Bah humbug - I need to end on a lighter note
Beckhams free kick ? no.
My toe nails - trimmed ? no.
Oscar wilde - Yes

Over the piano was printed a notice :
Please do not shoot the pianist. He is doing his best.

And that's all you can ever do.........

LOVE YOU LOTS
M

Day + 58

by moira603 @ Thursday, Jun. 15, 2006 - 09:56:14 pm

Well here I am again!

I checked in to Kings on Wednesday morning with my darling sister Claire and Graham ,all the nurses were so pleased to see me - quite a feature here at Kings now. Anyway can't say I was that pleased, in fact I've been on quite a downer (Poor me). The 2nd result for Cmv was positive so I 'm having IV drugs to beat it - this is good - what isn't so good is the drug is toxic to the kidneys and bone marrow so not so good. Hence extra care for me and even more water to swallow (Pause for gulp!).

Tomorrow I have to have my 3rd hickman line inserted and you know how I feel about those -this has to be the last - and I am assured it will be a repairable one in case I go loopy again and break that one ( don't worry I won't).

So with russ away, feeling pretty unwell and with the hickman in store it's fair to say I've not been a happy bunny. However, 2nd day in I'm feeling a little better. Still feel s**t but I'm ok.

It won't be until about Tuesday that I get the results of the next CMV test so lets hope it's a miraculous negative, I've got my '56day' biopsy that day too so we need some good results all round.

Wish I could be more upbeat or have energy to write more but must try and get some sleep now, no other news without mentioning the F word.(Think metatarsal)Other than of course my toe nails need cutting - again. Yes I've been staring at my feet a lot! So hurry back Russell.

I Do have my lovely sister Jane visiting this weekend and also my tarty friend Sheila from Cairo popping in tomorrow so you see I have lots to look forward to, lots of laughs to come and lots of life to live.

Thanks for all your comments I can't tell you how great they make me feel.

Must away to bed
Love M



 
 
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