I've had to cut my toenails twice since I've been in here.
Why do they grow at all?
You'd think that the drugs would have some effect wouldn't you ? i mean where are the benefits ?
Absolutely horrible coming back in here. Life catching up with me - reality.
Hooked back up to Paco. It really is a ball and chain. I can't explain the feeling when I was unhooked on saturday it was such freedom. to move around the room, go to the toilet - without Paco, wunderbar!!!
Miss the boys terribly.
Elliott is off to Cairo today, I hope he has a good time and can switch off and forget for a while, things will be hard when he gets back.
Ross and George will be off tomorrow and then Russ and I will have some quiet time together before it all starts on Monday.
I think the fact that there are some 'issues' with the house in Malvern and that the tranplant requires 100% of our attention means we'll put off any move on it at the moment, who knows maybe the price will fall again or something better will come along.
Like everything though that could change tomorrow.............

Transplant is my hope but don't want you all to think it's a done deal. My disease is a difficult one and the outcome of the transplant is random, there is still so much to learn. Statistics are not always helpful but if I tell you I'm the wrong side of 20% making it thru for a cure you'll understand why I'm a little bit down and preoccupied this week. I haven't given up and I don't want you to, but I do want you to be aware of what is about to unfold in the next few weeks......

Hope this isn't too much info, but I did set the blog up so that I could keep you up to date and I don't want you to have any false expectations. So, despite my irreverent toenails comments and the fluffy bunnies there is a serious message here too. Don't want to be too morose you know, it's lovely having you all out there keeping me going and you do.

So can I find a joke to end on...........

Speaking of Dying...
Three buddies were talking about death and dying.
One asked, "When you're in your casket and friends and family are mourning you, what would you like to hear them say about you?"

The first guy says, "I would like to hear them say that I was a great doctor of my time and a great family man."

The second man says, "I would like to hear that I was a wonderful husband and school teacher who made a huge difference in our children of tomorrow."

The third guy says, "I would like to hear them say LOOK, HE'S MOVING!!!"

I'm with the 3rd guy....

Love you loads.
M
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