blog.co.uk  »  Next Blog  »    Create your own blog for free •   •  Login

Day +53 - Over half way !!!

by moira603 @ Friday, Jun. 09, 2006 - 08:00:20 pm

Over half way to the day+ 100 everyone considers a major feat. I think every day is a major feat !!!
I'm sitting here and it's a lovely morning, didn't get too much sleep but I feel ok just now. Am contemplating the pile of pills I have to take and thinking about the 3 litres of water I need to drink today. Yuck just thinking about it makes me nauseous, but it has to be done.
Life is pretty much the same, I've made very little steps and that is very frustrating. My legs and feet still ache a lot, and it's not like they are carrying a lot of weight around these days - I now weigh 8 1/2 stone ! Some diet ! I am eating to build myself up but it can be hard, taste is still iffy and I can't eat huge quantities so I'm just picking here and there really. Walking short distances each day to build up my fitness and strength. Most of my numbers at the hospital are ok so I just have to keep going. Back tomorrow and will see the consultant and have more platelets.

I've been writing this post for 3 days now and it's actually now day +54 and I've been to have my platelets and see the consultant. Russells's off to Cairo as I speak and I'm going to stay with Claire so I thought I'd better get this post on or you'll all be wondering what on earth is going on!

Actually looks like I might have to go back in to hospital as CMV (Cyto megalovirus) has reactivated in me. Just waiting for one last result. Hope it's negative, but if not it's another 2 weeks in hospital and probably a 3rd hickman line. So you can understand why I'm not quite as bouncy as usual...... depressing thoughts.

So if you don't hear from me for a bit you know where I've gone!! I may actually go on to the private ward so might be able to update from there but my energy is pretty low so we'll see.

Got to go now, get my bag packed for Claire/ hospital,

Love M
XXX



 
 

Trackback address for this post:

authimage

Comments, Trackbacks: Hide subcomments

rosywoodrosywood [Member]
12/06/06 @ 19:00

Hey Mo...
Bit of a bummer...don't like the sound of this megalosaurus..sounds enormous...is it green? But I'm sure you'll fight it (and a 3rd hickup line) off like all the other dragons...
Scotland is spectaclar when the sun is shining and its warm...and so was the w/end...Mum and dad up for a few days so we had much lazing around and prosecco drinking along with a fab BBQ at the Linn of Dee....
All waiting for you once you can escape the sultry south for a visit...
Keep your pecker up - Russ will be home again soon!
Big love
Rxx

o [Visitor]

12/06/06 @ 20:24

Dear Mo,

CMV - I was reading up on it today for a nurse!! How bloody annoying for you!!
Glad you've mangaed to get some rays in, hasn't this week has been spectacular?!! I've been up early drinking tea in the back garden at 5am listening to Bristol wake up, seems too lovely to waste. I spent Saturday melting under the magnolia tree in the garden, trying to dig over a new bed to plant some gooseberry bushes in its shade - far tooo hot to dig earth as hard as concrete!! - Nick wasn't too keen on helping as the footie was on - suprise suprise!!
Hope Russ is back with you soon - keep nibbling!! LOL jux

RegosRegos [Member]
12/06/06 @ 20:47

Dear Mo
Just managed to loose a long message I had written to you - pushed the wrong button I guess. Just want you to know we are thinking of you daily. Don't like the sound of CMV so poke a stick in it ugly googly eye (I sure it is a one eyed monster) hope boys are getting through their exams ok - Tegan is over half way now. It is too hot for all this concentrating poor things. Hope Russ is home soon and that your hospital stay, if necessary, is short. Talk soon. stay positive and keep eating and drinking - little and often is the way to go.
Love as always Sarah xxx

Jane Stone [Visitor]

12/06/06 @ 20:47

Hi Moira,

CMV - just another beastie to conquer !! One you could do without of course but I'm sure you can beat it, Fantastic your blood counts are doing OK keep on going it'll be day 100 before you know it!!. Hope you don't need another hickman line.

Hopefully your sense of taste will soon come back, when everything tastes like the bottom of a birdcage it's pretty dire, but keep having little munchies and sneak the calories in.

The Elton John concert last night was fab, Worcester cricket ground is a beautiful setting, the weather was brill and even my bad tempered gut was frightened into submission and behaved for the whole event !

Had a great weekend really as I was taken shopping on the Saturday and had a bit of a splurge on some Summer clothes - have to say the centre we went to was air conditioned or I think it would have been meltdown.

Visited Bristol Cancer Help Centre again last week I am more impressed each time I go, have managed to pop into the chapel each time I go and ask for some support for our group on our individual journeys. I don't know if prayer works but it does no harm and the chapel certainly feels very special.

Hope Russ will soon be back from Cairo with you & that the boys are doing OK back at school I suppose exams are looming for them now.

Hope your mood lifts as you begin to feel a bit better this cancer stuff gets a bit demoralising at times doesn't it specially with the sort of bumpy ride you have been having - keep that fighting spirit up.

Love & Best Wishes

Jane

jilfarjilfar [Member]
12/06/06 @ 21:42

Dear Mo

One more dinosaur will be nothing to you. Go slay it girl! We will sharpen our swords - sorry, nail files - and be right behind you all the way. Book Club tomorrow night so lots of extra literary thoughts coming your way.

Love and hugs

Jill x

lcmunrolcmunro [Member]
12/06/06 @ 22:12

Hi sweetie , great weekend power boat trips in Brodick bay, foot massage at the spa and glorious sunshine !!! ............But what have you been up to in my absence ?......... can't leave you for a minute !!!! ...........
"Very small" crop trousers winging their way to you ............watch out for the cuddles when you open the bag lvu xxxxxxxxxxxx
CMV We can do this one xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

louise [Visitor]

13/06/06 @ 18:56

Hi Mo,

Was great to hear your voice the other day and a lovely
surprise. Really hope you don't have to go back in....
fingers crossed for you. Kalli says 'hi' she's here with
me now, although she should be in bed. Spent the afternoon
in hospital myself yesterday with a suspected ruptured overian cyst. As it happens it wasn't and i was just wasting everyones time!! Was I imagining the pain???
If you need to borrow any skiny clothes I've got some
I'm hanging onto that I haven't been able to wear since falling pregnant with Kristi....being realistic i really
don't need them anymore. Been a while since I was 8.5 stone!!
Take care Mo and ooking forward to seeing you in July.
Love and kisses Lou XXX

IanRespondIanRespond [Member]
13/06/06 @ 19:16

Moira, Russ and Family,

Just a quick note to let you know that we're still thinking of you and sending good vibes your way.

Every good wish to you and yours, as always :)

Ian & Classicrockchick

smithr8smithr8 [Member]
13/06/06 @ 20:57

Hi Mo,

Thought I'd just say hello from Egypt before bed...

Coming here still feels like coming 'home'. It's the people, they believe in life and in you so much Moira, and the the sunshine is hot but dry not like humid old London.

The house here is still hard to be in without you and the boys (home away from home, but somehow not 'home' without you all here). Nevermind. There are things to get done and people to see to get us moved on to Malvern and beyond. So life actually feels good!

Although I am not there with you as you check in to Guthrie Ward I am with you in spirit. Remember I am only a phone call away, and will be back there with a Willows' luch before you know it - and certainly by Monday next.

Nila, Abdou, Ahmed, Mohammed 'the Pool'(married and with new baby!, Rawda, Hani, Walid, Manal, Shirina, Engy, Noel, Peter, Sandy, Peter C, George P, Richard M, Mona H, John G, Sylvia, all the securty boys, etc. etc. they all send their love............the whole of Egypt is still praying and right there with you on your journey.

Love from a tired but happy me, in Cairo.

RussXXX

carrytaylor [Visitor]
http://carry49.blog.co.uk
13/06/06 @ 22:39

I have just come back from Book Club where we have just had a huge literary hug for you. We are reading a book called 'We need to talk about Kevin' and as not many have read it, we spent the evening talking about things that had nothing to do with the book at all. In fact, I don't think we mentioned the book more than twice. But we will next time and we had a very nice evening. Jill said that you had blogged and I had been looking every day to see how you were getting on and must have missed that entry but guess what here I am!! I don't know what it is that you mentioned but I have slayed it for you already. Love and kisses, as ever Carry. I am off to bed now so will write again tomorrow.xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

GoingSomewhereGoingSomewhere [Member]
13/06/06 @ 22:41

Hi Moira,
Just to let you know I'm thinking of you, and as always hoping that you are finding the strength to cope - which it looks as though you are.
xx

Judy [Visitor]

14/06/06 @ 15:11

Hi Moira

You are doing so well - over half way and still slaying dragons/dinosaurs - you can do this. Still thinking of you every day and sending positive healing energy your way.

Love and hugs

Judy

Megan [Visitor]

14/06/06 @ 21:49

If you can cope with the midges up here as you have for years then a little CMV should be a walkover.....speaking of walks...less than 2 weeks now to the Moonwalk in Edinburgh...I'm NOT READY. Training has been going fairly well but the 20 mile walk on Monday was hard going. Every time I began to flag a bit I thought of you and that if you can overcome all these demons/dinosaurs/dragons then the least I can do is stroll (in 7 and a half hours) for 26.2 miles.

Love

Megan

Leave a comment :

Your email address will not be displayed on this site.
Your URL will be displayed.
Allowed XHTML tags: <!, p, ul, ol, li, dl, dt, dd, address, blockquote, ins, del, a, span, bdo, br, em, strong, dfn, code, samp, kdb, var, cite, abbr, acronym, q, sub, sup, tt, i, b, big, small, img>
URLs, email, AIM and ICQs will be converted automatically.
Options:
 
(Line breaks become <br />)
(Set cookies for name, email & url)
Validation code:
Please enter the above code here:
For protection from spambots (case-sensitive).

Recent Posts

  1. Russell Running London Marathon April 22nd Raising Money for Leukaemia Research - Please Give Generously
    by moira603 on Wednesday, Feb. 07, 2007
  2. Memories from the Ya Ya Sisterhood...
    by moira603 on Thursday, Aug. 03, 2006
  3. Note Re cards for Moira.........
    by moira603 on Friday, Jul. 28, 2006
  4. Moira’s Funeral Arrangements - Wednesday August 2nd...............
    by moira603 on Thursday, Jul. 27, 2006
  5. 25th July 2006, Day +97
    by moira603 on Tuesday, Jul. 25, 2006
  6. Day +88.......Biopsy Result Good, Return to DMU for a Short Stay
    by moira603 on Sunday, Jul. 16, 2006
  7. Day +78
    by moira603 on Thursday, Jul. 06, 2006
  8. day + 70
    by moira603 on Wednesday, Jun. 28, 2006
  9. Day + 67
    by moira603 on Sunday, Jun. 25, 2006
  10. Day + 58
    by moira603 on Thursday, Jun. 15, 2006