Over half way to the day+ 100 everyone considers a major feat. I think every day is a major feat !!!
I'm sitting here and it's a lovely morning, didn't get too much sleep but I feel ok just now. Am contemplating the pile of pills I have to take and thinking about the 3 litres of water I need to drink today. Yuck just thinking about it makes me nauseous, but it has to be done.
Life is pretty much the same, I've made very little steps and that is very frustrating. My legs and feet still ache a lot, and it's not like they are carrying a lot of weight around these days - I now weigh 8 1/2 stone ! Some diet ! I am eating to build myself up but it can be hard, taste is still iffy and I can't eat huge quantities so I'm just picking here and there really. Walking short distances each day to build up my fitness and strength. Most of my numbers at the hospital are ok so I just have to keep going. Back tomorrow and will see the consultant and have more platelets.

I've been writing this post for 3 days now and it's actually now day +54 and I've been to have my platelets and see the consultant. Russells's off to Cairo as I speak and I'm going to stay with Claire so I thought I'd better get this post on or you'll all be wondering what on earth is going on!

Actually looks like I might have to go back in to hospital as CMV (Cyto megalovirus) has reactivated in me. Just waiting for one last result. Hope it's negative, but if not it's another 2 weeks in hospital and probably a 3rd hickman line. So you can understand why I'm not quite as bouncy as usual...... depressing thoughts.

So if you don't hear from me for a bit you know where I've gone!! I may actually go on to the private ward so might be able to update from there but my energy is pretty low so we'll see.

Got to go now, get my bag packed for Claire/ hospital,

Love M
XXX